This blog has been slightly depressing ever since I got diagnosed with lupus three years ago. So it’s cool to write this post with something positive!
The last time I wrote back in April, it was to say that my rheumatologist wanted me to increase my medication again. I didn’t, but I was discouraged by my lack of improvement. Life went on, though, and nothing got worse. I definitely take care of myself better now than I used to before I got diagnosed, so I just continued on as normal.
I’ve seen my doctor twice more since my last blog post. The first time we left everything the same again. But then I got a surprise the second time: she suggested that I try to get off the immunosuppressant. (insert shocked smiley here)
It was really nice that she did this because I had actually been prepared to ask her if I could try to get off it against her wishes. So when she made the suggestion herself, my day got so much easier and so much better! I was all smiles that day.
I got off the medication completely after Twitchcon in October, which was two months ago. And I’m feeling great! I’ve had absolutely zero problems since then, not even a hint of joint pain. In fact, my joints bothered me more often when I was on the medication compared to now that I’m off. I’m sure that’s a coincidence, but it’s an interesting thing to consider.
I can’t describe how much happier I am now that I’m not taking that terrible drug. So much of the pain I had from the lupus diagnosis was psychological, which can sometimes be worse than physical pain. I’m so grateful that I was able to get off it and that things are going very well since.
I’m one of those people who tends to blog less often when things are going well, hence my lack of posts since April. But when one of my lovely Twitch subscribers posted in my forum thread (https://www.stacknfade.com/forum/topic/twitch-courtiebee-hang-out-thread/page/16/#post-25828) with a link to an article about lupus and diet, I thought I should probably post an update.
Thanks so much for reading! See you on Twitch I hope 😉